New PDF release: Minority Recruitment in Cancer Genetics Studies (Community

By D.J. Bowen, V.B. Penchaszadeh

Particular subject factor: neighborhood Genetics 2008, Vol. eleven, No. four This detailed subject factor of 'Community Genetics' includes contributions discussing the topic in-depth. 'Community Genetics' is a well-respected, foreign peer-reviewed magazine in Genetics. particular subject matters are integrated within the subscription.

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B A prostate cancer early detection and screening research study. c The largest cancer registry data base in the San Antonio area and managed by the Methodist Hospital. d Risk clinic located at the Cancer Therapy and Research Center. Table 2. Recruitment material distribution Study materials Study cover letter Consent form (2 copies) Buena Vida magazine Buena Vida magazine evaluation questionnaire Texas Cancer Genetics Consortium questionnaire Refusal questionnaire Self-addressed, postage-paid return envelope Intervention Telephone follow-up Table 3.

Table 1 is included to illustrate this point. Increasing minority recruitment generally requires focusing on racial and ethnic identifiers in clinical records. Therefore, registries that do not request such information or that rely only on last names to identify ethnicity can be problematic. For those researchers who work outside institutions that host registries, it is incumbent upon registry staff to assume significant responsibility for information processing and quality control. In reality, adequate infrastructure may not exist, staff may not be appropriately trained for the task or are overburdened with other tasks, and hiring new staff to support the study may not be feasible.

3%. 0% of the entire study population. 4% answered race as other. However, Ramirez et al. 8%). Most subjects were of Catholic faith (78%), and the majority had a high school education or greater, with nearly half having earned a college degree. 7% had a family history of cancer. Considering cancer history across the treatment conditions, subjects in X1 also had slightly higher rates of personal and family cancer history than X2 or X3; however, this did not positively correlate with increased interest in participating in the national CGN cancer registry.

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